Treatment Update (II)

It’s been almost 6 months since I started my Lyme treatment. I didn’t write about it more because my brain is very bad at organising and prioritizing information – a lot has happened and a lot is still happening, so what should I write about in a comprehensible mode? Today i feel like I can do a sort of summary.

I started the IV antibiotic Ceftriaxone on July 12 and it ended in the beginning of November. The reason was a ‘borderline’ EKG, which was interpreted by my family doctor as ‘increased QTc interval due to the IV antibiotic’. Although my doctor in BCA chose specifically this antibiotic because it does not affect the QT interval. A phone appointment with the BCA doctor two weeks later confirms that the QTc was not longer because of IV Ceftriaxone, but because of the herxheimer reaction – too many bacteria dying and their toxins/neurotoxins were not flushed out quick enough. A more recent EKG, after one and a half month without IV antibiotic, showed that my QTc was longer now than it was in the beginning of November – 453 vs. 451.

In November I asked my BCA doctor to switch to herbal antibiotics, at least until my QTc goes down and my doctor here can give me IV abx without worrying. My BCA doctor also told me that doctors are not familiar with what a herxheimer reaction is and explaining it to them is quite an impossible task. The way I understood it better – it’s similar to being poisoned (poisons are toxins/neurotoxins that affect the body in a number of ways). Now, that I’ve been off IV antibiotic for two months and I noticed that I am much better now than after 4 months of Ceftriaxone, I consider it a thing of the past. I decided to take my treatment in my own hands (what an improvement in the quality of my thinking!) after realising that I NEVER read any story, on any website or forum, of people who have entered a full remission after synthetic antibiotics treatment. All success stories have been from people who did a herbal antibiotics protocol, whether Buhner’s or Klinghardt’s — most of the time, after months or years of synthetic abx not doing much for them. I’m a rebel and this lady’s full recovery story stirred up something in me. That’s what I want for me.

What I didn’t tell either of the doctors was this – during the entire month of October, I’ve been taking a supplement which improves any Lyme treatment. It’s called DTC Plus. And I also added in, without permission, rosemary essential oil from time to time – this is a badass because it disrupts the communication between ALL bacteria in the body, so they cannot work as a pack to launch their next attack. Around that time I actually started having herxheimer reactions and liver pain at night. My experience with Ceftriaxone was that it gave me energy, and thanks to that energy, I could actually do the things that helped my body fight the bacterial load on its own (doing things around the house, walking every day and so on). But I don’t think it did much to kill the Lyme.

LymeSpot revised
Results from my LymeSpot revised in September

Actually, I don’t even know for sure if I’m fighting the active Borrelia infection or just a bad inflammatory response + Bartonella – they both can mess up the brain in unimaginable ways. My Lyme Elispot has been constantly showing no active fight against Borrelia, but my Bartonella Elispot showed that my body is fighting Bartonella. Anyway, this is pure speculation, based on what I’ve observed, since there’s still no test which is 100% accurate when it comes to borrelia, bartonella, babesia and other ‘obscure’ bacteria that steal the life of thousands and millions of people. We will get there surely, because it’s the disease which spreads fastest amongst all diseases and, even though big pharma cannot profit from it (synthetic abx don’t do much, so why have tons of costly research if no one will ever be able to make big money from it?!), governments will be forced to spend a lot of money on developing tests at least. Or when big pharma will find a way to have intellectual property over Mother Nature’s best treatments.

Considering that I’ve had real progress in the last two months only using herbal antibiotics and fighting inflammation with the best from Mother nature (myrrh and frankincese), I will not go back to synthetic antibiotics. Never ever had I had a herx so bad that it kept me up all night from Ceftriaxone + Mynocicline. Yet, three days ago it happened from a few drops of antibiotic essential oils rubbed on my neck. On the other hand, my BCA doctor said that there’s no standard treatment, everything is a trial and error. I will bet all the time I spend to beat the disease on the treatments that always work – the herbal antibiotics. They are powerful enough to kill the MRSA superbugs, and borrelia is not a superbug, just a slimy little thing that has had billions of years of perfecting its survival techniques.

Echoes

Listen. Put your ear on the dirt
Hear the sky running through our veins:
We were found by the water
We were bound in its blue

Listen. Hear the wind of the winter
It speaks horizons in the trees:
We are born feathers
We are now leaves

Listen. Walk on the sand, on the dunes
Hear the trembling of the bedrock:
We will spring into freedom
We will become ourselves

 

 

Lyme and Choices

There are days when my brain works better, and thus my mind works better. I start to think, trying to understand my situation, my day to day life or how I fit into the life of others. The problem with such questions, with just a basic ability to construct a logic argument in an attempt to figure things out, is that you cannot arrive very far in your understanding. My mind stops in the middle of several premises and then I ask myself ”what am I thinking about?” Or things become blurry and there’s this nothingness in my conscious thinking that I cannot escape.

These days I’m thinking about how I would not be alive if it weren’t for V., because I cannot work to have even the basic necessities covered, let alone to cover the cost of my treatment. And when I say I cannot work, it’s not that I’m picky about jobs – honestly, I am not well enough to even be a videochat model, which is by far the easiest job in the world. And why I could not do it? Because it involves talking with other people and being physically active, and I don’t have the cognitive or the physical abilities to do either. Even talking to my doctor and explaining my symptoms or asking for tests is an area where I tend to fail most of the times – which is why, for appointments where there are several things to discuss with my doctor, I ask V. to come with me and do the talking. Otherwise, I forget what I have to talk about, I don’t ask questions (because no question arises in my head) regarding doctor’s indications and so on. I’m like a child when it comes to face to face interactions.

I remember one day, there were two men at our door and they asked to come in to check the air conditioning in the apartment. I listened to them but my mind was not able to process any kind of response. A few seconds passed, I looked at them while I was trying to come up with something to do or say, I realized that the more time passes, the more awkward it gets so I did what any child would do – call their parents to deal with the unexpected situation. I called V. and, out of curiosity, I listened to the conversation so as I would know what to do or say in the future. And such situations are the new normal for me, whenever there’s something new, unexpected – be it a conversation with my doctor, with the nurses or other people.

But this post was supposed to be about Lyme and choices, specifically, the fact that V. doesn’t really have a choice to be with me or not. And I feel guilty for it, I never wanted to be the one to put someone in this position. I don’t know how to solve this predicament. Do I have a choice that will not affect him? Does he have a choice that will not affect him? What do we know? I don’t know. I’m doing my best to keep the guilty feeling at bay and just take every day at a time.

Inflammation, Insomnia and Lyme – Solutions

Two and a half years ago, my insomnia began – 3-4 hours of insomnia per night, due to heat/no air-conditioning/awfully hard bed. It was the beginning of the worst decline of my health ever.

It hasn’t stopped ever since – maybe I managed to sleep a few nights during the whole night with the aid of magnesium, Benadryl or other synthetic drugs. I never tried benzos (first or second generation) or Elavil/other anti-depressants that are sometimes prescribed for sleep. Cymbalta? No thank you – after taking it one 30 mg pill only once, I had 8 hours of insomnia, I woke up with tachychardia, chest pressure (felt like I was trapped with my chest under a car), shallow breathing and the doctor on call that night did an EKG. I was ‘lucky’ to have been in a hospital at that time.

Herbs, Drugs and Minerals for Lyme Insomnia

Gabapentin – it allowed me to sleep for 6 hours straight, but the 3 hours insomnia per night continued;

Herbs: Hops – pretty much the same effect as gabapentin; Valerian root – no effect; CBD oil – I was able to sleep through the night for a week and a half and then it stopped working; other herb combos – no effect whatsoever; Tieschlaf modulator – it made me sleep then I would wake up groggy and stay that way for 3 days straight; melatonin – the same grogginess as with the previous sleep aid (which also contain melatonin and I believe this ingredient was the one responsible for the grogginess); 5 HTP – no significant improvement; Theanine – some improvement in the beginning, but after a few nights it stopped working; motherwort, blue vervain, avena sativa, GABA natural, etc. – no effect.

Magnesium – worked well (I had all the criteria for magnesium deficiency also since 2015), it reduced my insomnia to 2 hours per night.

Benadryl – worked best in combination with magnesium, only 1-2 hours of insomnia per night

I made combination of these things too – magnesium + CBD + melatonin + theanine for example. And so on.

Essential Oils for Lyme Insomnia

Inflammation Solutions
Frankincense and Myrrh Essential Oils bought on Amazon

Two months ago, I started reading the Klinghardt protocol for treating Lyme and I noticed a section dedicated to essential oils. I noticed Melissa officinalis and Lavender as two of the most recommended for sleep/calming the nervous system.

Melissa officinalis essential oil for Lyme insomnia I slept well for about 3 weeks, still with 1 hour of insomnia, but that was already excellent. After 3 weeks, I started to wake up groggy, with headaches, and feeling awful during the day. I stopped it and switched to Lavender. Lavender essential oil for Lyme – did a good job, as good as Melissa officinalis, for about two weeks. Afterwards, the same side effects as for Melissa oil, which were worse than insomnia. I had to give them up in the end. I also combined them with CBD oil and that was not a good choice.Last month I decided to buy the oils mentioned here, since the guy is now in remission after his treatment combo of antibiotics, herbs, essential oils and supplements. After all, the Lavender and Melissa oil worked like a charm, even if only for a short period of time. I also read some of the scientific research done on Lavender oil and on Melissa oil, which showed evidence of their effects on the nervous system. I must admit, until I read the science behind it, I wasn’t convinced essential oils could have such a profound effect on the organism they were administered to. I definitely saw the effects on me, yet, for some reason, I thought it was just a small effect, maybe just on me etc.

At the same time, the fingers and their small joints started to hurt like a thousand needles were inserted in them. Small bumps on the fingers – between the joints – started to appear, to be continuously swollen, after I went outside on a very cold day without gloves. This never happened before, but I remembered my mother’s fingers and hands and she has arthtritis. Inflammation was the reason so I used 2 drops of Frankincense oil on my hand after a few days where I couldn’t use my right hand for anything. After a few hours, I could make a fist and open my hand easily and rapidly, with no pain. And that made me think.

Frankincense and Myrrh Essential Oils for Lyme Inflammation

My BCA doctor told me that my insomnia is the direct result of inflammation and there was little to be done for it on the natural sleep aids side. So, one of those evenings, I mixed Frankincense and Myrrh essential oils with a carrier oil (1:1 solutions) and used a few drops on the back of my neck. The result? I slept through the night, for the first time in 2.5 years.

When the bottle emptied, I no longer had Frankincense oil, so I made a new one but only with Myrrh essential oil. This one had a lower impact, so I still had 1 hour of insomnia because, even though I applied it in the middle of the night when I woke up, it worked much slower than the Frankincense essential oil.

I bought again Frankincense essential oil, made a new mixture with a carrier oil (1:3 ratio) and been using it for the past 2 weeks with marvelous results. I’ve been free of insomnia for one month now. I sleep 7.5-8.5 hours every night.

I added magnesium in higher doses every day (about 600 mg – 750 mg per day), because I noticed I had my symptoms of magnesium defficiency due to the essential oil use ( I’m not sure how it works, I’m not a doctor, but I believe the compounds in the essential oils are using the magnesium in order to get where they need to get in the body). The symptoms of magnesium defficiency are unspecific, but, in my case, if I start clenching my teeth at night, I know it’s because of magnesium in low supply.

I’m thankful I found something that actually works against inflammation and allows me to sleep through the night. I’ve been taking oral supplements for inflammation with little to no noticeable results (OPC Plus from MakeWell, best curcumin extracts and others).