Treatment Update (II)

It’s been almost 6 months since I started my Lyme treatment. I didn’t write about it more because my brain is very bad at organising and prioritizing information – a lot has happened and a lot is still happening, so what should I write about in a comprehensible mode? Today i feel like I can do a sort of summary.

I started the IV antibiotic Ceftriaxone on July 12 and it ended in the beginning of November. The reason was a ‘borderline’ EKG, which was interpreted by my family doctor as ‘increased QTc interval due to the IV antibiotic’. Although my doctor in BCA chose specifically this antibiotic because it does not affect the QT interval. A phone appointment with the BCA doctor two weeks later confirms that the QTc was not longer because of IV Ceftriaxone, but because of the herxheimer reaction – too many bacteria dying and their toxins/neurotoxins were not flushed out quick enough. A more recent EKG, after one and a half month without IV antibiotic, showed that my QTc was longer now than it was in the beginning of November – 453 vs. 451.

In November I asked my BCA doctor to switch to herbal antibiotics, at least until my QTc goes down and my doctor here can give me IV abx without worrying. My BCA doctor also told me that doctors are not familiar with what a herxheimer reaction is and explaining it to them is quite an impossible task. The way I understood it better – it’s similar to being poisoned (poisons are toxins/neurotoxins that affect the body in a number of ways). Now, that I’ve been off IV antibiotic for two months and I noticed that I am much better now than after 4 months of Ceftriaxone, I consider it a thing of the past. I decided to take my treatment in my own hands (what an improvement in the quality of my thinking!) after realising that I NEVER read any story, on any website or forum, of people who have entered a full remission after synthetic antibiotics treatment. All success stories have been from people who did a herbal antibiotics protocol, whether Buhner’s or Klinghardt’s — most of the time, after months or years of synthetic abx not doing much for them. I’m a rebel and this lady’s full recovery story stirred up something in me. That’s what I want for me.

What I didn’t tell either of the doctors was this – during the entire month of October, I’ve been taking a supplement which improves any Lyme treatment. It’s called DTC Plus. And I also added in, without permission, rosemary essential oil from time to time – this is a badass because it disrupts the communication between ALL bacteria in the body, so they cannot work as a pack to launch their next attack. Around that time I actually started having herxheimer reactions and liver pain at night. My experience with Ceftriaxone was that it gave me energy, and thanks to that energy, I could actually do the things that helped my body fight the bacterial load on its own (doing things around the house, walking every day and so on). But I don’t think it did much to kill the Lyme.

LymeSpot revised
Results from my LymeSpot revised in September

Actually, I don’t even know for sure if I’m fighting the active Borrelia infection or just a bad inflammatory response + Bartonella – they both can mess up the brain in unimaginable ways. My Lyme Elispot has been constantly showing no active fight against Borrelia, but my Bartonella Elispot showed that my body is fighting Bartonella. Anyway, this is pure speculation, based on what I’ve observed, since there’s still no test which is 100% accurate when it comes to borrelia, bartonella, babesia and other ‘obscure’ bacteria that steal the life of thousands and millions of people. We will get there surely, because it’s the disease which spreads fastest amongst all diseases and, even though big pharma cannot profit from it (synthetic abx don’t do much, so why have tons of costly research if no one will ever be able to make big money from it?!), governments will be forced to spend a lot of money on developing tests at least. Or when big pharma will find a way to have intellectual property over Mother Nature’s best treatments.

Considering that I’ve had real progress in the last two months only using herbal antibiotics and fighting inflammation with the best from Mother nature (myrrh and frankincese), I will not go back to synthetic antibiotics. Never ever had I had a herx so bad that it kept me up all night from Ceftriaxone + Mynocicline. Yet, three days ago it happened from a few drops of antibiotic essential oils rubbed on my neck. On the other hand, my BCA doctor said that there’s no standard treatment, everything is a trial and error. I will bet all the time I spend to beat the disease on the treatments that always work – the herbal antibiotics. They are powerful enough to kill the MRSA superbugs, and borrelia is not a superbug, just a slimy little thing that has had billions of years of perfecting its survival techniques.

8 thoughts on “Treatment Update (II)”

  1. Yep , I get you !
    Oh so familiar . I have been taking TICK RECOVERY – order on amazon . Herbs in a powder . Helping quite a bit . Not sure how you found me … but I’m more active on instagram for lyme . Stay in touch ! My new lyme friend & fellow warrior !

    Liked by 1 person

  2. Glad you’re doing better! I’ve mostly been doing synthetic antibiotics, so it’s interesting to hear someone having a lot of success on natural ones alone. I know too well how nasty inflammation from Bartonella treatment can be: a week of Rifampin for Bartonella triggered a massive attack of autoimmune encephalitis/PANS that required two months of IV steroids! I’m still healing and traumatized four months later, and I’ll never take Rifampin ever again!

    Liked by 1 person

    1. Hey, I read a study that there’s only 5% of chronic lyme patients recover only with synthetic antibiotics. The majority either feels better, or doesn’t have any improvement. The only success stories are either combinations of synth+herbal abx, or just with herbal abx.
      The lady at realfoodrebel.com did it with herbal abx + parasite elimination + diet. I want full remission. Maybe if you heal the Lyme, your PANS will also improve. What do your doctors say?

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      1. Interesting. I do include Enula, Xylitol, Stevia, and quite a few supplements–plus a nutrient-dense diet. Yes, thankfully the PANS is supposed to go away when the Lyme does, since it’s triggered by infection. It could recur with another infection/virus down the road, but I try not to think about that possibility. I’ve improved a lot over the last year of treatment, but it’s definitely been rough on my body.

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